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Christine Waggoner
President and Co-Founder at Cure GM1 Foundation


Christine Waggoner and her husband Douglas Dooley founded the Cure GM1 Foundation in April 2015 in honor of their daughter Iris and all those affected by Juvenile GM1 Gangliosidosis. Christine graduated from Brown University where she studied Visual Art and Computer Science. The combination of studies in art and technology served as a basis for her career in computer graphics and 3D feature film animation. Founding and running Cure GM1 is a true labor of love to help bring a treatment to all those affected by GM1 Gangliosidosis. To date, Cure GM1 has raised millions through grassroots fundraising and is the only 501(c)(3) nonprofit entirely dedicated to GM1 Gangliosidosis medical research. Cure GM1's patient advocacy has contributed to efforts which will very soon be in human clinical trials.

Agenda Sessions

  • The shifting model: How new era, patient-led collaborations are transforming drug discovery and development in rare disease, and beyond - Hilton Union Square